January 22, 2020
7th Annual Kickin’ It Up for Kids with G.A.N. Fundraiser
We are pleased to announce that Justin Quirke from New York will be our Guest…
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Who is Ethan
Ethan is a boy with a diagnosis of Giant Axonal Neuropathy (GAN). He inspired this organization to be what it is today. By just being himself, Ethan teaches anyone he encounters about the power of love, gratitude, hope, laughter and compassion.
What is GAN
Is a rare inherited genetic disorder that affects both the central and peripheral nervous systems. The majority of children with GAN will begin to show symptoms of the disease sometime before five years of age.
Why Donate
Currently, there is no cure or treatment for GAN. As the disorder progresses, patients become quadriplegics, dependent on a feeding tube and ventilator and having it be such a rare disease there isn’t much awareness.
